From: "Paulo Quadros" <paulo@quadros.me.uk>
To: "Heather Wallace" <painconcern@btinternet.com>
Subject: Cross Party Group on Chronic Pain
Date: Tue, 26 Feb 2008 09:45:28 -0000
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Dear Helen/Gillian

Please pass on my apologies as I will not be able to attend tonight's =
meeting - again, and thank you for forwarding me the minutes of the last =
meeting and all the documents.

With reference to the NHS QIS report (Getting to GRIPS), it is the most =
complete report yet produced on the Chronic Pain services and I feel =
that there is a need for positive action now rather than endlessly =
debating the subject and going round in circles.  The report really has =
everything that's needed for action and provides a framework for =
restructuring the delivery of services to chronic pain sufferers.

On the other hand, trying to put myself on the government's position, =
the task seems so enormous that I can understand why there's so much =
difficulty in putting recommendations into place.  I feel that, one way =
we (the X-party group) could help the government to have a clearer view =
of how to put appropriate mechanisms in place which would match the =
recommendations of the many reports published so far, would be the =
provision of one initial practical strategic plan showing HOW the =
service could be delivered.  This would include not only mechanisms for =
referral, fairly detailed staffing needs and costs.

Perhaps the appointment of an independent pain service =
Regulator/Minister with powers and responsibilities, working with =
his/her own advisory team, specialised on each of the points outlined in =
the NHS QIS' action plan would help implement and maintain an effective, =
standardised chronic pain service.  There is much already in place in =
terms of existing advice, from QIS' 'Getting to GRIPS' and 'Health =
Technology Assessment Reports' to Managed Clinical Networks and the of =
extended scope practitioners (ESPs).  I feel that there are 'too many =
cooks' (of the best calibre, I'd like to add) but no one putting it all =
together.

Difficulties in the provision of effective, standardised chronic pain =
management service is not only a Scottish/British issue but seem to =
apply the world over.  Perhaps we could learn what other countries are =
doing about their chronic pain services, take the best of what is =
relevant to the British health service and use this together with what =
we already have to formulate our own solutions.  There are good examples =
of organisations that could be looked at to help develop our own chronic =
pain services such as the International Association for the Study of =
Pain, the US' Department of Veteran Affairs (which, incidentally has a =
very good tool kit called 'Pain as the 5th Vital Sign') and many others.

One of the 'Health Technology Assessment Report 12' (HTAR 12) =
(secondary) recommendations is that "Any evaluation of service redesign =
should incorporate consideration of both clinical and cost effectiveness =
and should use validated clinical outcome measures".  Although the =
report refers to acute back pain, this would also be valuable in the =
chronic pain service.  There are quite a few validated clinical outcome =
forms used throughout the world but most do not include all the =
recommended markers in this report (eg Brief Pain Inventory, =D6rebro =
Musculoskeletal Pain Questionnaire, Oswestry Disability Index, Pain =
Beliefs And Perceptions Inventory, Quebec Back Pain Disability Scale, =
West Haven-Yale Multidimensional Pain Inventory and so on).  Most of =
those require a great amount of time consuming data and are very =
specific about the subject of the data collected (psychological, back =
pain, etc). The Glasgow Pain Questionnaire, a generic measure of pain, =
is easier and quicker with a 'Yes/No' system of ticking boxes but does =
not incorporate all the recommended markers in the HTAR 12. The US =
Department of Veteran Affairs has a series of outcome evaluation =
measures (POQ scoring templates) but, again, address different pain =
circumstances.

Perhaps a dedicated evaluation system can be developed borrowing from =
the various validated assessment tools.  When we did this at our =
organisation, we came out with a seven page evaluation tool (which, =
although does not specifically take into account 'cost effectiveness', =
this can be derived from the existing questions in the evaluation =
document). This 'First Consultation Form' considers all possible known =
biopsychosocial factors known to be related to pain including =
nutritional, lifestyle and some known drug-related forms of pain such as =
the use of biophosphonates which are suspected to cause intense pain =
even after patients stop taking them.

It was interesting to note that the HTAR 12 illustrates the benefits of =
the use of a 'gatekeeper'.  The same concept could be also applied to =
general chronic pain (rather than just acute back pain) but they would =
have to be trained beyond the levels described in the report. =20

I particularly welcome the findings on the use of 'alternative' =
therapies.  Given that approximately 14-20% of patients with chronic =
disease have consulted Complementary Practitioners and about 75% of the =
public support NHS access to complementary medicine (according to the =
Prince of Wales Foundation's report 'Integrated Healthcare - A Way =
Forward for the Next Five Years?'), there is a real need for evaluation =
of CAM effectiveness and standard/uniform regulation for their use in =
chronic pain management  - even if only to address the issue of =
patients' choice and safety.

It is well know that there is a lack of 'good' evidence research, =
employing the usual 'gold standard' of RCT.  But, because the benefits =
of some therapies are not suitable for this type of evaluation, a =
starting point  for evaluation could  be along the lines of the wider =
encompassing mechanisms detailed in the King's Funds' report 'Evidence =
and Public Health'. =20

Whatever the arguments are against the use of complementary/alternative =
therapies and against their possible role as one of the standard =
interventions in a multi-disciplinary pain management approach, the =
issues that they raise need to be addressed.

It is because of the many papers and reports written so far and their =
very few immediate practical benefits to pain sufferers that we decided =
to form our Community Interest Company.  This circumvents the existing =
lack of funding and will give a snapshot of what a truly integrated, =
multi-disciplinary model can achieve (the service includes mainstream =
and complementary interventions following a biopsychosocial model - but =
no medication - and aims at working with health providers, specially at =
primary care level, assisted by an advisory board comprising mainstream =
and CAM specialists).

I am sorry I will miss the meeting tonight.  The 'new' format seems =
great with the inclusion of speakers on specialist subjects.

Best regards

Paulo



* * * * * * * * * * * * * * * * * * * * * * * * * * * * * *
Confidentiality: This e-mail and its attachments are intended for the =
above named recipient(s) only and may be confidential and/or privileged. =
If they have come to you in error you must take no action  based on =
them, nor must you copy or disclose them or any part of their  contents =
to any person or organisation; please reply to this e-mail  and =
highlight the error immediately and delete this e-mail and its =
attachments from your computer system.
=20
This footnote also confirms that this email message has been swept by =
AVG for the presence of computer viruses.

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Intlife Pain Management Services CIC - Registered in Scotland Number =
SC313871
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<DIV>&nbsp;</DIV>
<DIV>
<DIV>Dear Helen/Gillian</DIV>
<DIV>&nbsp;</DIV>
<DIV>Please pass on my apologies as I will not be able to attend =
tonight's=20
meeting - again, and thank you for forwarding me the minutes of the last =
meeting=20
and all the documents.</DIV>
<DIV>&nbsp;</DIV>
<DIV>With reference to the NHS QIS report (Getting to GRIPS), it is the =
most=20
complete report yet produced on the Chronic Pain services&nbsp;and I =
feel that=20
there is a need for positive action now rather than endlessly debating =
the=20
subject and going round in circles.&nbsp; The report really has =
everything=20
that's needed for action and provides a framework for restructuring the =
delivery=20
of services to chronic pain sufferers.</DIV>
<DIV>&nbsp;</DIV>
<DIV>On the other hand, trying to put myself on the government's =
position, the=20
task seems so enormous that I can understand why there's so much =
difficulty in=20
putting recommendations into place.&nbsp; I feel that, one way we (the =
X-party=20
group) could help the government to have a clearer view of how to put=20
appropriate mechanisms in place which would match the recommendations of =
the=20
many reports published so far, would be the provision of&nbsp;one =
initial=20
practical strategic plan showing HOW the service could be =
delivered.&nbsp; This=20
would include not only mechanisms for referral, fairly detailed staffing =
needs=20
and costs.</DIV>
<DIV>&nbsp;</DIV>
<DIV>Perhaps the appointment of an independent&nbsp;pain service=20
Regulator/Minister with powers and responsibilities, working with =
his/her own=20
advisory team, specialised on each of the points outlined in =
the&nbsp;NHS QIS'=20
action plan would help implement and maintain an effective, standardised =
chronic=20
pain service.&nbsp;&nbsp;There is much already in place in terms of=20
existing&nbsp;advice, from&nbsp;QIS' 'Getting to GRIPS' and 'Health =
Technology=20
Assessment Reports'&nbsp;to Managed Clinical Networks and the of =
extended scope=20
practitioners (ESPs).&nbsp; I feel that there are 'too many =
cooks'&nbsp;(of the=20
best calibre, I'd like to add) but no one putting it all together.</DIV>
<DIV>&nbsp;</DIV>
<DIV>Difficulties in the provision of&nbsp;effective, standardised =
chronic pain=20
management service is not only a Scottish/British issue but seem to =
apply the=20
world over.&nbsp; Perhaps we could learn what other countries are doing =
about=20
their chronic pain services, take the best of what is relevant to the =
British=20
health service and use this together with what we already have to =
formulate our=20
own solutions.&nbsp; There are good examples of organisations that could =
be=20
looked at to help&nbsp;develop our own chronic pain services such as the =

International Association for the Study of Pain, the US' Department of =
Veteran=20
Affairs (which, incidentally has a very good tool kit called 'Pain as =
the 5th=20
Vital Sign') and many others.</DIV>
<DIV>&nbsp;</DIV>
<DIV>One of&nbsp;the 'Health Technology Assessment Report 12' (HTAR=20
12)&nbsp;(secondary) recommendations&nbsp;is that <EM>"Any evaluation of =
service=20
redesign should incorporate consideration of both clinical and cost=20
effectiveness and should use validated clinical outcome =
measures</EM>".&nbsp;=20
Although the report refers to acute back pain, this would also be =
valuable in=20
the chronic pain service.&nbsp; There are quite a few validated clinical =
outcome=20
forms used throughout the world but most do not include all the =
recommended=20
markers in this report (eg Brief Pain Inventory, =D6rebro =
Musculoskeletal Pain=20
Questionnaire, Oswestry Disability Index, Pain Beliefs And Perceptions=20
Inventory, Quebec Back Pain Disability Scale, West Haven-Yale =
Multidimensional=20
Pain Inventory and so on).&nbsp; Most of those require a great amount of =
time=20
consuming data and are very specific about the subject of the data =
collected=20
(psychological, back pain, etc). The&nbsp;Glasgow Pain Questionnaire, a =
generic=20
measure of pain,&nbsp;is easier and quicker with a 'Yes/No' system of =
ticking=20
boxes but does not&nbsp;incorporate all the recommended markers in the =
HTAR 12.=20
The US Department of Veteran Affairs has a series of outcome evaluation =
measures=20
(POQ scoring templates) but, again, address different pain=20
circumstances.<BR></DIV>
<DIV>Perhaps a dedicated evaluation system can be developed borrowing =
from the=20
various validated assessment tools.&nbsp; When we did this at our =
organisation,=20
we came out with a seven page evaluation tool (which, although does not=20
specifically take into account 'cost effectiveness', this can be derived =
from=20
the existing questions in the evaluation document).&nbsp;This 'First=20
Consultation Form'&nbsp;considers all possible known biopsychosocial =
factors=20
known to be related to pain including nutritional, lifestyle and some =
known=20
drug-related forms of pain such as the use of biophosphonates which are=20
suspected to cause intense pain even after patients stop taking =
them.</DIV>
<DIV>&nbsp;</DIV>
<DIV>It was interesting to note that the HTAR 12 illustrates the =
benefits of the=20
use of a 'gatekeeper'.&nbsp; The same concept could be also applied to =
general=20
chronic pain (rather than just acute back pain) but they would have to =
be=20
trained beyond the levels described in the report.&nbsp; </DIV>
<DIV>&nbsp;</DIV>
<DIV>I particularly welcome the findings on the use of 'alternative'=20
therapies.&nbsp; Given that approximately 14-20% of patients with =
chronic=20
disease have consulted Complementary Practitioners and about 75% of the =
public=20
support NHS access to complementary medicine (according to the Prince of =
Wales=20
Foundation's report 'Integrated Healthcare - A Way Forward for the Next =
Five=20
Years?'), there is a real need for evaluation of CAM effectiveness and=20
standard/uniform regulation for their use in chronic pain =
management&nbsp; -=20
even if only to address the issue of patients' choice and safety.</DIV>
<DIV>&nbsp;</DIV>
<DIV>It is well know that there is a lack of 'good' evidence research, =
employing=20
the usual 'gold standard' of RCT.&nbsp; But, because the&nbsp;benefits =
of some=20
therapies are not suitable for this type of evaluation, a starting =
point&nbsp;=20
for evaluation <EM>could</EM>&nbsp; be along the lines of the wider =
encompassing=20
mechanisms detailed in the King's Funds' report <EM>'Evidence and Public =

Health'</EM>.&nbsp; </DIV>
<DIV>&nbsp;</DIV>
<DIV>Whatever the arguments are against the use=20
of&nbsp;complementary/alternative therapies and against&nbsp;their =
possible role=20
as one of the standard interventions in a multi-disciplinary pain =
management=20
approach, the issues that they raise need to be addressed.</DIV>
<DIV>&nbsp;</DIV>
<DIV>It is because of the many papers and reports written so far and =
their very=20
few immediate practical benefits to pain sufferers that we decided to =
form our=20
Community Interest Company.&nbsp; This circumvents the existing lack of =
funding=20
and will give a snapshot of what a truly integrated, multi-disciplinary =
model=20
can achieve (the service includes mainstream and complementary =
interventions=20
following a biopsychosocial model - but no medication - and aims at =
working with=20
health providers, specially at primary care level, assisted by an =
advisory board=20
comprising mainstream and CAM specialists).</DIV>
<DIV>&nbsp;</DIV>
<DIV>I am sorry I will miss the meeting tonight.&nbsp; The 'new' format =
seems=20
great with the inclusion of speakers on specialist subjects.</DIV>
<DIV>&nbsp;</DIV>
<DIV>Best regards</DIV>
<DIV>&nbsp;</DIV>
<DIV>Paulo</DIV>
<DIV>&nbsp;</DIV>
<DIV>&nbsp;</DIV>
<DIV>&nbsp;</DIV></DIV>
<DIV align=3Dcenter>* * * * * * * * * * * * * * * * * * * * * * * * * * =
* * *=20
*</DIV>
<DIV>Confidentiality: This e-mail and its attachments are intended for =
the above=20
named recipient(s) only and may be confidential and/or privileged. If =
they have=20
come to you in error you must take no action&nbsp; based on them, nor =
must you=20
copy or disclose them or any part of their&nbsp; contents to any person =
or=20
organisation; please reply to this e-mail&nbsp; and highlight the error=20
immediately and delete this e-mail and its attachments from your =
computer=20
system.<BR>&nbsp;<BR>This footnote also confirms that this email message =
has=20
been swept by AVG for the presence of computer viruses.</DIV>
<DIV>&nbsp;</DIV>
<DIV align=3Dcenter>* * * * * * * * * * * * * * * * * * * * * * * * * * =
* * * * *=20
* * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * *=20
<BR>Intlife Pain Management Services CIC - Registered in Scotland Number =

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------=_NextPart_000_015E_01C8785C.51AA51A0--

